Ep. 2: Heather
Released March 13, 2020 by Push Diaries Podcast
This is Heather’s story.
It was very hard for her to share.
Trusting God or the universe with our lives is never easy. Heather is honest and unreserved despite the turmoil of her situation. She wants you to know about the genetic disease her family faces daily called Metachromatic Leukodystrophy. A disease that robs her later adult years.
In people with Metachromatic Leukodystrophy, white matter damage causes progressive deterioration of intellectual functions and motor skills, such as the ability to walk or make decisions. Affected individuals also develop loss of sensation in the extremities (peripheral neuropathy), incontinence, seizures, paralysis, an inability to speak, blindness, and hearing loss. Eventually they lose awareness of their surroundings and become unresponsive.
Learn more about the disease
and how to donate at The MLD Foundation.org.
Tess and Heather, Summer 2017 on the Cannon River near Welch, MN with their matching monarch butterfly tattoos.
Butterflies are deep & powerful representations of life. Many cultures associate the butterfly with our souls. The Christian religion sees the butterfly as a symbol of resurrection. Around the world, people view the butterfly as representing transformation, endurance, change, hope, & life.
Find a local support group near you for substance abuse at Alcoholics Anonymous. We can all help prevent suicide. The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals. Call the National Suicide Prevention Hotline at 1-800-273-8255.
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